UPDATE THURSDAY, JANUARY 19,2006, Current developments:
We had an appointment with Dr. K this morning. He lowered the steroid level to a half a tab or 2 mg. every other day. We hope that this will continue to lessen the side effects of the steriods. In the last 30 days, Hawk's weight has increased from 32 lbs. to 40 lbs. or 25 % because of the steriods. Hawk does not look at all like the old Hawk. The effect is seen most in his face, which is now very round and puffy. They made a mask of his face and head, before the radiation was started, to be able to properly guide the treatments. This morning the Dr., administrating the mediation to put him to sleep, stated that they had had to put a breathing tube down his throat before the radiation treatment. His face and neck had swollen so much that the mash was restricting his breathing. It is our prayer that the effects of the steriods will lessen, he will start to eat less, and his weight will be reduced.
As of Tuesday, 1/17/06, Hawk's attitude has continued to improve with the reduction of the steroid levels. He continues to feel better. We often play memory and go fish in the radiation waiting room floor while we are waiting for the doctors. It is wonderful to hear him laughing. He and Mom beat Pa every time. He gets a big kick out of that. We make a bid deal going into the hospital that he is not going to win that day. His answer is always the same, "Oh yes I am".
Below is a picture taken in the radiation waiting room. Lindy and Hawk were in the floor playing with a space ship toy that had been given to him by a lady that we play bridge with. They were having a great time with a lot of laughing. You can see the effect of the steriods in his face. You can look at the picture of him with the family information publication to see the impact.
We had an appointment with Dr. K this morning. He lowered the steroid level to a half a tab or 2 mg. every other day. We hope that this will continue to lessen the side effects of the steriods. In the last 30 days, Hawk's weight has increased from 32 lbs. to 40 lbs. or 25 % because of the steriods. Hawk does not look at all like the old Hawk. The effect is seen most in his face, which is now very round and puffy. They made a mask of his face and head, before the radiation was started, to be able to properly guide the treatments. This morning the Dr., administrating the mediation to put him to sleep, stated that they had had to put a breathing tube down his throat before the radiation treatment. His face and neck had swollen so much that the mash was restricting his breathing. It is our prayer that the effects of the steriods will lessen, he will start to eat less, and his weight will be reduced.
As of Tuesday, 1/17/06, Hawk's attitude has continued to improve with the reduction of the steroid levels. He continues to feel better. We often play memory and go fish in the radiation waiting room floor while we are waiting for the doctors. It is wonderful to hear him laughing. He and Mom beat Pa every time. He gets a big kick out of that. We make a bid deal going into the hospital that he is not going to win that day. His answer is always the same, "Oh yes I am".
Below is a picture taken in the radiation waiting room. Lindy and Hawk were in the floor playing with a space ship toy that had been given to him by a lady that we play bridge with. They were having a great time with a lot of laughing. You can see the effect of the steriods in his face. You can look at the picture of him with the family information publication to see the impact.
As of Monday, 1/16/06, Hawk continues to respond well to the reduction in the level of steroid mediation. He has laughed and smiled much more this week.
Skyla and Hawk were at home with Lindy Friday night. Skyla throw up and had diarreha during the night. The grandkids spent Sunday night with us. About 2 AM, Hawk became sick. He throw up twice in the mid of the bed requiring a complete bed change. He also had a fever. Thank the Lord, the illness did not last long. Both kids were over the illness the next day. Hawk's temperature was normal by the time for him to have his radiation treatment.
posted by Ken (Pa) McPeak at 8:29 PM
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